Posts Tagged ‘love’

33 years of kicking Cystic Fibrosis’s A$$!!!
Thursday, November 5, 2009 | 3 Comments

Yesterday I celebrated 33 years of fighting and living and loving… We lost some of our most precious fighters over the last few months… but that is why we fight!!!
I want to thank you all so much for all the love (even though you don’t leave comments)and support over the years…
We are hitting mile stones everyday and everyday is a new better greater day!!! I love you all with all my heart and wanted you to know, that if you are reading this… YOU are one of the reasons I will kick CF’s A$$ for another 33 years!!!
XOXO
Sarah Jean

Is it just me?
Thursday, January 31, 2008 | 7 Comments

I’m 31 and I was recently pondering an area of my life that is semi-lacking and am just wondering how other people out there feel about it… I was so lucky to have found love a few years back when that ended I found myself wondering if it had to do with my CF… I had walked in one day and Justin was sitting at our desk, as I got closer I noticed he had pulled up a website on CF and all the stats… He turned around and had tears streaming out of his eyes… I explained to him that I was healthy and that no one is guaranteed tomorrow… I told him that my CF was not going to kill me and to be honest with his past-time hobbies (Motocross, ultimate fighting, quadding) that I should be more worried than he should… He assured me that it wasn’t a big deal and that he loved me and my CF was not going to play a part in it… As time went on and we found ourselves engaged and talking about children… He was tested to see if he carried any of the CF genes and it came back he didn’t… We were so ecstatic about the news… A few months later we were  over with no real reason why… He would swear it had nothing to do with my CF, but it is the only logical reason I can explain how a relationship like ours would just be over…

This was not the first time something like that had happened, it was just different because it appeared that my CF wasn’t going to play a part in our relationship… A few times in the past I have had relationships that have seemed to have ended because of the CF and the fear that comes along with being in love with someone with a possible life threatening disease… I think that men with CF may have an easier time finding a gf/wife that is OK with it because women have the need to take care of someone, so it works out better in that case, I think… That is just my opinion though and I am SO curious what you think about the subject… Has anyone else out there found that once their CF is mentioned, that the relationship changes…