Here I am doing what I have always dreamed of doing!!! FLYING!!!

I have a cold like no other I have had in a very long time. I am quickly reminded of how lucky I am to have such great health…
Two weeks ago I went into the hospital because I was going to be a part of the Vertex 770 study. I was so SO excited to be a part of such an amazing study… So I am there and go to do my PFTs… the highest I have been in the last 10 years is 68% and that was in primo shape!!! I BLEW A 72%!!! I could not believe it!!! I cried…
A couple days later we lost my grampa George… a very sad day for my family… My his soul rest in peace… After a day of sad and crying I started feeling feverish and I could feel that my lungs were swollen… and there it was… lurking in the darkness… A COLD!!!
So here I am, 10 days later… and finally feeling better… though the cough I have is still terrible… and I feel SO TIRED!!! I step on the scale today… 122 lbs!!! EEKKK!!! I am on a mission to regain my weight and my lung capasity… but it is just a reminder for all of you out there that think, “But you look so healthy…”
Thank you all and I hope to be on here alittle more in 2010!!!
xoxo
Sarah Jean

I have received so much positive feedback about my video (see below) and I want to thank you so much if you find yourself on our page!!! Please feel free to go to “contact us” and send me a message… I love hearing from you all…
xoxo
Sarah Jean

It went great and we are so thankful to all of you that came out and showed support, not only for the boys in Telluride, but for Breathe 4 Tomorrow!!! There are pictures and we are trying to figure out how to post them, so be patient and in the mean time, you can go to http://www.facebook.com/album.php?aid=33200&id=1145256584&l=eb4554e852 and take a look!!!

Thank you to Telluride… we appreciate you guys so much and wish you all the success in this world… For those of you who have never heard them, please take a minute to go check them out at www.tellurideband.com… they wrote the song Hope Happens Here… I am going to share the lyrics with you all, please take a minute and read them… and you will understand why these guys have a special place in my heart…

HOPE HAPPENS HERE by Telluride

You never get the chance to prepare yourself
Even if you had there is no way to tell
If it would be easier to know your world is turning upside down
Its just so hard to look up when you’ve fallin
And you can’t even start til your at the bottom
Down on your knees praying you’re not alone
Asking God for a little HOPE
Then you find it
Here on a new strangers face
That just got the news they’re in the same wait
Hope happens here
In the hearts and the hands of the people doing all they can
Hope Happens Here
Hope Happens Here
So your finding that you never have to fight alone
And there’s no way to repay the love that is shown
In a hallway that feels more like a home
To always know that wherever you go
You’ll be right here
In a 10 year olds smile, that lights up the room as he walks by
Hope Happens Here
In the songs that you sing as your rockin your baby to sleep
Hope Happens Here
Hope Happens Here
When you fight til you swear that you’ve had enough
But you there no way you’d ever think of givin up
Hope Happens Here
On that same stranger face that just got the new they going home today
Hope Happens Here
In a young mothers eyes that just realized they’ve won
Hope Happens Here
Hope Happens Here

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=2325541

IT’S HERE!!! and I am going to bug you all until you donate your dollar to our Power of 1 Person fundraising… that means everyday bulletins and personal messages until you donate your dollar!!! It is just one dollar!!! and then you ask all of your friends for a dollar and hope that at least 10 of them will do the same…

In a matter of time we will reach our goal… ONE MILLION DOLLARS from ONE MILLION PEOPLE!!! We can do it!!! and in the process we will be raising awareness for Cystic Fibrosis!!!

Thank you and please repost this OVER AND OVER UNTIL AT LEAST 10 of your friends have doanted…

IF you aren’t comfortable with funds via the internet, we ask that you collect your dollars and then send in a cashiers check!!!

IT IS ONLY ONE DOLLAR!!!

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=2325541

Last night I was having “one of those” nights… I am allowed those ever so often, so I am told… Anyways, whenever I feel that way, I like to think about the “good” that comes along with CF… and I was quickly reminded of a situation last year, that I would like to share with you…
I had been on a bout of antibiotics and just been released from “the pen”, with my PICC in, I decide that I am going to go for the night to celebrate my release!!! LOL!!! I am not a big partier and come the end of the night, I am over taken by guilt and decide I am going to drink enough water to “rinse myself clean”… BAD IDEA!!! What I didn’t know is that if you drink enough water, you can actually die from depletion of sodium in your body… I remember it so clearly, I was just not feeling right and then started hallucinating so I called 911… The ambulance showed up and gave me O2 and a warm blanket because I was heading into shock… I was coming in and out of  and kept telling myself to stay awake so I don’t die… I knew I was dying and it was the scariest consciousness!!! I remember there being so many people and I was freaking out, I kept screaming at the top of my lungs that I didn’t want to die!!! The nurses kept telling me I needed relax, how could I??? The fear in everyone’s eyes just made me more afraid… I finally took a deep breath and turned it over to God, I told him I wasn’t ready to die, I still had so much life to live… Right as I turned it over, Dana walked in… I begged her not to let me die… She told me she was going to do everything in her power, but I needed to relax… It was so weird how afraid to relax I was… But I trusted in her… The next thing I remember is waking up in the hospital connected to all these machines… The doctor came in and explained he could not explain why I had not died… Normal Sodium levels are around 137 and they consider 120 fatal… I was at 117!!! He said I should be a complete vegetable or dead… I had purpose and that is why I am still here… Breathe 4 Tomorrow Foundation is my purpose…
Over the next few days I thought about it and I am convinced that because of our sodium CF stuff, that I am here today… I  am thankful once again for this disease I have… Not only has it made me the strong woman I am, but I do believe that CF saved my life…

I have been so blessed with the people I have been blessed to know on this journey… Two of them are the Burton Brother from livingondubiously.com… They have one of the most amazing CF blogs out there… I first fell in love with their blog about Parenting a CF Warrior… I shared it with every parent I know and to this day, I am constantly asked about it… So I want to post it here on our blog spot… Though I want to give credit where credit is due, so please take a visit to their site and see for yourself… Please enjoy the articles…

PARENTING A WARRIOR WITH CF

By Evan Burton

The single most rewarding experience in many people’s lives will be the gift of raising children. That being said, the most fruitful things in our lives are often the most difficult. When my mom and dad decided to have kids, they never could have imagined the hardships and tribulations that would be placed before them. It was the amazing power of intention and positivity that made my parents so successful in crafting two of the strongest little warriors the world would ever see.

It was when my brother was two and my mom was pregnant with me, that little Spence started experiencing some strange symptoms. After taking him to several different doctors for his unexplained digestion problems, he was diagnosed with Cystic Fibrosis. When I was born it was their natural inclination to have me tested, which proved to be the same diagnosis. In being forced to deal with such a bleak outlook of our disease, and rejecting the current idea that Cystic Fibrosis was a death sentence, my parents developed a parenting style which they believed would give us the power to manifest our own outcome and write the pages to our own life.

The Amazing Power of the Mind

“Man often becomes what he believes himself to be. If I keep on saying to myself that I cannot do a certain thing, it is possible that I may end by really becoming incapable of doing it. On the contrary, if I have the belief that I can do it, I shall surely acquire the capacity to do it even if I may not have it at the beginning.”

- Mahatma Gandhi

An emphasis on the infinite potential and power of each and every human being is of the utmost importance, if one intends on laying the groundwork for a life of success for their child. The importance of enforcing this outlook cannot be overlooked, for it will be the single most important tool in your arsenal if you wish for your child to overcome adversity and gain control over their health. When I was a child there was one thing that my mom would tell me that always stuck out in my mind. She would sit me down and tell me that I had the ability to do absolutely anything and everything that I wished to do in my life, as long as I believed I could do it. She went on to say that my disease was only there to teach me an important life lesson, just like everything else in this world, and that I could overcome it as long as I took the lesson that it was there to show me.

I can remember days where I would sit out on the lawn for hours and try to levitate, thinking that I could do anything that I wanted to as long as I believed it. When I told my mom about my failed attempts, she would say that of course I could fly if I tried hard enough, but that it would take a long time and that it might be a better idea to focus my concentration onto something more productive. I started dreaming big and becoming obsessed with the possibilities that lay before me. I knew that I would grow up to make a difference in the world. I thought about becoming the President of the United States or becoming a famous scientist or doctor that would cure diseases. I dreamt about becoming a famous musician or artist that would spread my love and vision throughout the world. I fully believed that I could do any of these things and that my disease would not dictate my place in this world. In fact, I didn’t even think about my disease too often. It was never made a big deal by my parents, so I didn’t see it as a big deal either. It was just a part of who I was, and something I was forced to overcome.

When I was around 15 years old my parents told me a story of great importance that would further strengthen my belief in the power of positive thought. The story was about some friends of theirs’ whom also had a child with Cystic Fibrosis. They were extremely religious people who, upon their child’s diagnoses, said to her that she was going to have some hard times with her disease. They said not to worry though, because if she died that she would go to heaven and be taken care of by god. It wasn’t until her late teens that she passed away and her parents’ prophecy fulfilled itself. My parents believed it was their friends’ negative outlooks that lead to their daughter’s eventual death, despite their best intentions. They were merely unaware of the amazing power of suggestion and the possibility of another way. It was when my brother and I were very young that she passed away so our parents decided to keep this story secret from us in order to uphold the outlook that they wanted us to have.

I can remember my mom pointing out famous people on T.V. and saying that they had Cystic Fibrosis, just like me. She would say that despite having this disease, they were still successful and healthy and they didn’t let it stop them from anything. To this very day I cannot find information on these people sharing my same disease, and I suspect that my mom made some of these things up in order to give me a belief in the longevity and success of my life. I would not have ever wanted my mom to change the way she did things because these were the things that gave me hope. These were the things that solidified my belief in my own infinite potential and my power to be anything I wanted to be.

The Importance of Love above All Else

There will be times in every child’s life when it seems like they are falling off of the right path and acting in a way that you don’t feel is right. It is important for you to never react in anger because this is not what your child is lacking. When you react in anger, your child is more likely to want to rebel against your wishes. The best way to light the path for your child is through unconditional love and being an upstanding example for them. If you feel as though you might know what’s best for your child in terms of their life path then you need to take a step back and look at the real picture. Forcing them to go to college or to pursue a specific life path can be very damaging to them and only delay the discovery of their true life path. The best way to help them grow into the amazing adult that you want them to be is by supporting them through thick and thin and letting them know that you believe in the fact that they will be successful in whatever they put their minds to.

Love is the main lacking factor in a troubled child’s life. The more love that is offered, the stronger foundation and confidence your child will have on which to build their life of health, wealth, wisdom, and happiness. Part of being a warrior is learning to know what tools to use in order to effectively inspire others to their greatest potential. Although a small amount of tough love is sometimes necessary, the mostly negative aspects of anger, guilt, judgment, and manipulation can never be effective. We must always focus on the transformational tools of positive reinforcement, support, understanding, and above all else: Love.

An Example to Learn From

My life has been a direct reflection of the love and support that my parents laid before me. My confidence and success in life can be credited to the positive outlook that was given to me at an early age. There has never been a moment in my life that I doubted my ability to overcome my disease or find happiness and success in life.

Today I am 23 years old and I am experiencing great success in pursuing my dream of becoming a professional musician. My brother and I have toured the country with our band Indubious and began to spread our message to the world. Our first album is due for a 2008 release and you can check www.indubiousmusic.com for more info. I have supported myself by working part time in the real estate industry, which has given me the financial freedom to support the following of my dreams. My brother and I decided to created www.livingindubiously.com in order to inspire other people to overcome adversity in their life and realize their true potential.

Today my health is better than ever and I owe it all to my positive outlook and motivation that pushes me to take great care of my body. I go snowboarding, biking, running, hiking, play sports and work out. I have never let my disease hold me back from anything and I can keep up with whatever life throws at me. My outlook for the future is bright and I couldn’t be more content with my life. In order to raise a warrior you must first become one yourself.

After the success of my first warrior’s guide to parenting, I couldn’t help but feel like there was something missing; a hole in the story that was begging to be told. It wasn’t until I started to read the responses from people who were promising to go out and teach their warriors how to take control of their own lives that I realized what an important piece of the puzzle I had forgotten.

Although it was apparent that my parents had gone out of their way to tell me things that would empower me in my life, it was often the things that they didn’t say that had the most impact on me. It was when the motivational talks were over, and life was waiting for me, that their quiet confidence was a constant guide in my success and health.

The way that my parents treated me like a normal person, and never emphasized my disease is what kept my mind in the right place and allowed me to focus my energy into other aspects of my life. They provided me with the basic knowledge of my own infinite potential, and it was up to me to apply it to my own life situations.

If my parents were to have told me repeatedly about how I could overcome my disease if I practiced positive thinking and fought hard enough, then it would have felt forced and out of place to me. It’s when minds are young and observant that this kind of desperation is easily sensed by a child, and taken as a sign of their parents’ own weakness and fear.

If one wishes to have the best possible impact on their child’s life then they must act as an example and role model, constantly demonstrating through the application of these techniques in their own lives. The very act of being positive, and never wavering in your belief in the power of intention, will be more than enough to uphold the vibration that is conducive to an environment of positive manifestation for your young one.

Children are immensely more observant and intuitive than adults. Going out of our way to pound an idea into their heads is often unnecessary and can be counterproductive. Your own quiet confidence in their abilities is usually all they will need. When they are troubled about something in specific, then one must only refer back to the general rule of the universe by saying that we have the ability to craft any kind of outcome that we desire, as long as we believe we can.

If man has the power to change his life through the use of his own intent, then imagine the possibilities when two people can focus their intent towards the same goal. The simple act of believing and being confident in the abilities of your child will offer a foundation of strength and confidence that will empower them to achieve what they wish.

If what you wish is for your child to have the utmost confidence in his own abilities, then you must first build and maintain the confidence within yourself that will facilitate this kind of result.