Love you guys and hope you guys liked my song for you!!!!
xoxo
Your big Cyster
Sarah Jean

Make sure you check out my blog at http://www.youtube.com/SarahJean1976

If you haven’t checked it out, make sure you check this out!!! it is AMAZING!!! We are closer to a cure than we have EVER been!!!

I have a cold like no other I have had in a very long time. I am quickly reminded of how lucky I am to have such great health…
Two weeks ago I went into the hospital because I was going to be a part of the Vertex 770 study. I was so SO excited to be a part of such an amazing study… So I am there and go to do my PFTs… the highest I have been in the last 10 years is 68% and that was in primo shape!!! I BLEW A 72%!!! I could not believe it!!! I cried…
A couple days later we lost my grampa George… a very sad day for my family… My his soul rest in peace… After a day of sad and crying I started feeling feverish and I could feel that my lungs were swollen… and there it was… lurking in the darkness… A COLD!!!
So here I am, 10 days later… and finally feeling better… though the cough I have is still terrible… and I feel SO TIRED!!! I step on the scale today… 122 lbs!!! EEKKK!!! I am on a mission to regain my weight and my lung capasity… but it is just a reminder for all of you out there that think, “But you look so healthy…”
Thank you all and I hope to be on here alittle more in 2010!!!
xoxo
Sarah Jean

I have received so much positive feedback about my video (see below) and I want to thank you so much if you find yourself on our page!!! Please feel free to go to “contact us” and send me a message… I love hearing from you all…
xoxo
Sarah Jean

Yesterday I celebrated 33 years of fighting and living and loving… We lost some of our most precious fighters over the last few months… but that is why we fight!!!
I want to thank you all so much for all the love (even though you don’t leave comments)and support over the years…
We are hitting mile stones everyday and everyday is a new better greater day!!! I love you all with all my heart and wanted you to know, that if you are reading this… YOU are one of the reasons I will kick CF’s A$$ for another 33 years!!!
XOXO
Sarah Jean