Comments on: Vertex 770/ 890 study http://breathe4tomorrow.org/2010/01/vertex-770-890-study/ Mon, 02 May 2011 01:37:38 +0000 hourly 1 http://wordpress.org/?v= By: Larry http://breathe4tomorrow.org/2010/01/vertex-770-890-study/comment-page-1/#comment-235 Larry Wed, 09 Jun 2010 15:17:00 +0000 http://breathe4tomorrow.org/2010/01/vertex-770-890-study/#comment-235 Loved you email, my young son is on the 770 as well. He has been healthy the last 2 years, so we do not have the increase in health to let us know if we are on the placebo or not. Have you ever opened a pill and tasted it, if so, how did it taste? God Bless, Larry Loved you email, my young son is on the 770 as well. He has been healthy the last 2 years, so we do not have the increase in health to let us know if we are on the placebo or not. Have you ever opened a pill and tasted it, if so, how did it taste?

God Bless,

Larry

]]> By: Lindsey Ford http://breathe4tomorrow.org/2010/01/vertex-770-890-study/comment-page-1/#comment-180 Lindsey Ford Sun, 17 Jan 2010 23:57:12 +0000 http://breathe4tomorrow.org/2010/01/vertex-770-890-study/#comment-180 I am currently on the VX-770 study for CF mutation G551D. Technically I do not know if I am taking the drug or placebo. However, I will say it is truly amazing how I feel!! No sweat crystals, no antibiotics in 6 weeks, no coughing, etc., etc. I am on the 3rd trial and the drug will be out in 2-4 years. Pls keep pushing this topic b/c this is a miracle for CFers with this muation. I feel so great I will be running a half marathon on the 65 Roses team!! Pls visit my fundraiser page at: www.firstgiving.com/lindseyford1 I am currently on the VX-770 study for CF mutation G551D. Technically I do not know if I am taking the drug or placebo. However, I will say it is truly amazing how I feel!! No sweat crystals, no antibiotics in 6 weeks, no coughing, etc., etc. I am on the 3rd trial and the drug will be out in 2-4 years. Pls keep pushing this topic b/c this is a miracle for CFers with this muation. I feel so great I will be running a half marathon on the 65 Roses team!! Pls visit my fundraiser page at: http://www.firstgiving.com/lindseyford1

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