Comments on: The weirdest (dumbest) Question I have ever heard… http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/ Mon, 02 May 2011 01:37:38 +0000 hourly 1 http://wordpress.org/?v= By: Kerri (XandersGirl/BeyondBlessed in CF group) http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-93 Kerri (XandersGirl/BeyondBlessed in CF group) Thu, 19 Feb 2009 18:45:06 +0000 http://breathe4tomorrow.org/?p=279#comment-93 it is the small minded people out there that have nothing better to do than to hide behind the computer screen and spout ignorance. you keep doing what you are doing, darlin!! we are here behind you 100 percent! Sarah, what you think about you bring about. you keep shooting for the moon darlin.. if you miss you are still amongst the stars and anyone that cant see what your doing for the greater good, has bigger problems than need be mentioned. kisssssses to you sweetie... were here for you! Keep on keeping on darlin! your Tops! it is the small minded people out there that have nothing better to do than to hide behind the computer screen and spout ignorance.

you keep doing what you are doing, darlin!! we are here behind you 100 percent!

Sarah, what you think about you bring about. you keep shooting for the moon darlin.. if you miss you are still amongst the stars and anyone that cant see what your doing for the greater good, has bigger problems than need be mentioned.

kisssssses to you sweetie… were here for you! Keep on keeping on darlin! your Tops!

]]> By: Mandy http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-92 Mandy Wed, 18 Feb 2009 18:33:17 +0000 http://breathe4tomorrow.org/?p=279#comment-92 Awwww Sarah, people are stupid and uneducated. That was just plain rude. The punishment for such a hurtful email should be to be your assistant for one week. See what you do...see how what you do affects people in their everyday life. Or maybe walk a week in my shoes...a bad week. How about the week we were in the hospital with Julianne and they shut off our gas and were threatening to turn off our electric. Things were so bad...we try so hard...we were so down in the dumps right then that no one knows....and then like a miracle you came along and when we got home there was gas and electric ( and there still is because we have most certainly kept up with it!) for our daughter to be able to do her treatments and be warm. That is a miracle...that is the good stuff you do all the time for people. Whoever this mean mean person is they should feel how it is to be on the bottom and be lifted up. A cure will mean nothing if we can't keep these kids alive in the meantime while they are working on it. We have to be able to get to appointments, afford meds, be able to stay in the hospital without falling so far behind...you are a God sent angel Sarah...don't ever let anyone tell you different! I am so glad my card reached you at that very moment. Everything happens for a reason. With so much love, Mandy Oh and to the person who wrote this...if you are reading this...you better be careful...Sarah is a hero to so many...you are messing with little CFer's role model and hero...that is not the best move...you are gonna have an angry mob of 3 year olds knocking on your door wanting some answers as to why Sarah is upset!! People donate to both causes...that is just how it is...are you going to write to the people raising money for cancer patients and research and tell them they are taking away fromt he CFF??? Didn't think so. Awwww Sarah, people are stupid and uneducated. That was just plain rude. The punishment for such a hurtful email should be to be your assistant for one week. See what you do…see how what you do affects people in their everyday life. Or maybe walk a week in my shoes…a bad week. How about the week we were in the hospital with Julianne and they shut off our gas and were threatening to turn off our electric. Things were so bad…we try so hard…we were so down in the dumps right then that no one knows….and then like a miracle you came along and when we got home there was gas and electric ( and there still is because we have most certainly kept up with it!) for our daughter to be able to do her treatments and be warm. That is a miracle…that is the good stuff you do all the time for people. Whoever this mean mean person is they should feel how it is to be on the bottom and be lifted up. A cure will mean nothing if we can’t keep these kids alive in the meantime while they are working on it. We have to be able to get to appointments, afford meds, be able to stay in the hospital without falling so far behind…you are a God sent angel Sarah…don’t ever let anyone tell you different! I am so glad my card reached you at that very moment. Everything happens for a reason. With so much love, Mandy

Oh and to the person who wrote this…if you are reading this…you better be careful…Sarah is a hero to so many…you are messing with little CFer’s role model and hero…that is not the best move…you are gonna have an angry mob of 3 year olds knocking on your door wanting some answers as to why Sarah is upset!! People donate to both causes…that is just how it is…are you going to write to the people raising money for cancer patients and research and tell them they are taking away fromt he CFF??? Didn’t think so.

]]> By: Heather (mommafirst) http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-91 Heather (mommafirst) Wed, 18 Feb 2009 15:13:38 +0000 http://breathe4tomorrow.org/?p=279#comment-91 Don't let one bad egg spoil the bunch. You are doing SOMETHING and you are making a difference. From this CF momma that is an awesome and much respected thing. I hope my daughter is healthy enough, motivated enough, and as selfless enough to do something like this as an adult too! Don’t let one bad egg spoil the bunch. You are doing SOMETHING and you are making a difference. From this CF momma that is an awesome and much respected thing. I hope my daughter is healthy enough, motivated enough, and as selfless enough to do something like this as an adult too!

]]> By: Julie http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-90 Julie Wed, 18 Feb 2009 14:41:21 +0000 http://breathe4tomorrow.org/?p=279#comment-90 I think your foundation is amazing and a long time overdue in the CF community!! It is great that the CFF is funding the search for a cure, and it's also great that there are medications and treatments now to keep CFers alive longer. But if we are going to prolong their lives, we ought to also do something for their quality of life as well. There is no point in living a long life if all you are experiencing is hardships. Brush it off, clearly they don't get the point of your foundation, you are doing great things! I think your foundation is amazing and a long time overdue in the CF community!! It is great that the CFF is funding the search for a cure, and it’s also great that there are medications and treatments now to keep CFers alive longer. But if we are going to prolong their lives, we ought to also do something for their quality of life as well. There is no point in living a long life if all you are experiencing is hardships.

Brush it off, clearly they don’t get the point of your foundation, you are doing great things!

]]> By: Patti (Transplantmommy from a CF forum) http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-89 Patti (Transplantmommy from a CF forum) Wed, 18 Feb 2009 14:00:49 +0000 http://breathe4tomorrow.org/?p=279#comment-89 I cannot believe that anyone would write that....it's ridiculous and you are not a selfish person. You are doing GREAT things for the CF community!! There is also a foundation here in NY who raises money so they are able to give that money to CF families in need and I have been on the end of their help and it is amazing what they do. I agree that we really need a cure, but we also need to help people with CF along the way. One of the things that the TTCF has helped me with is gas money to my CF doctor and also to Cleveland Clinic for my transplant follow-up appointments. If they did not help, I don't know how I would have gotten there. You are doing the same thing that this foundation is doing that has helped me and it reallyis a blessing!! Take care of yourself and don't worry about that e-mail....it was probably a pharm rep who wrote it. LOL I cannot believe that anyone would write that….it’s ridiculous and you are not a selfish person. You are doing GREAT things for the CF community!! There is also a foundation here in NY who raises money so they are able to give that money to CF families in need and I have been on the end of their help and it is amazing what they do. I agree that we really need a cure, but we also need to help people with CF along the way. One of the things that the TTCF has helped me with is gas money to my CF doctor and also to Cleveland Clinic for my transplant follow-up appointments. If they did not help, I don’t know how I would have gotten there. You are doing the same thing that this foundation is doing that has helped me and it reallyis a blessing!! Take care of yourself and don’t worry about that e-mail….it was probably a pharm rep who wrote it. LOL

]]> By: Mindy http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-88 Mindy Wed, 18 Feb 2009 13:31:13 +0000 http://breathe4tomorrow.org/?p=279#comment-88 Don't worry about people like that! That person obviously is not educated . You are doing the right thing and u don't have to explain yourself to anyone! The ones that actually know what u are doing and what BFTF is, they are who matters.. We all know that you are doing a great thing for familys out there.. Keep up the good work! You are doing a great thing for the CF community!! You are a blessing Sarah, not selfish! Don’t worry about people like that! That person obviously is not educated . You are doing the right thing and u don’t have to explain yourself to anyone! The ones that actually know what u are doing and what BFTF is, they are who matters.. We all know that you are doing a great thing for familys out there.. Keep up the good work! You are doing a great thing for the CF community!! You are a blessing Sarah, not selfish!

]]> By: Angie F. http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-87 Angie F. Wed, 18 Feb 2009 05:09:07 +0000 http://breathe4tomorrow.org/?p=279#comment-87 Sarah, Don't let the few uneducated and selfish people out there get you down! I'm so proud of you and what you're doing for so many people and families out there! Keep your head up and your heart in the right place! Sarah,
Don’t let the few uneducated and selfish people out there get you down! I’m so proud of you and what you’re doing for so many people and families out there! Keep your head up and your heart in the right place!

]]> By: Alyssa http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-86 Alyssa Wed, 18 Feb 2009 03:33:02 +0000 http://breathe4tomorrow.org/?p=279#comment-86 I can't believe anyone would ever write that either. First of all, anyone who starts any kind of foundation with the intent of helping other people is not in any way, shape or form, selfish. Thats an oxymoron in itself. Second of all. Many of those medications are unbelievably expensive and someone should ask that person who wrote that email to walk in the shoes of a CFer or the mother/father of a CFer. I recently got married and my husbands new insurance only covers 50% of my Pulmozyme, which means that my COPAY is $755! Umm...HELLO!?! And then they (the insurance company) have the nerve to tell me, "well there must be something else that you can take that does the same thing as this medication" UMM...what?!? So yeah, what you are doing here is helping to keep little CFer's healthy enough so that when the cure is found they will still be well enough to benefit from that cure. I personally feel bad for whoever wrote that email, because I don't know how anyone can survive in this world being that naive. Keep up the good work, and Ill go donate another dollar =) Love, Alyssa In Loving Memory of Danny I can’t believe anyone would ever write that either.
First of all, anyone who starts any kind of foundation with the intent of helping other people is not in any way, shape or form, selfish. Thats an oxymoron in itself.
Second of all. Many of those medications are unbelievably expensive and someone should ask that person who wrote that email to walk in the shoes of a CFer or the mother/father of a CFer. I recently got married and my husbands new insurance only covers 50% of my Pulmozyme, which means that my COPAY is $755! Umm…HELLO!?! And then they (the insurance company) have the nerve to tell me, “well there must be something else that you can take that does the same thing as this medication” UMM…what?!? So yeah, what you are doing here is helping to keep little CFer’s healthy enough so that when the cure is found they will still be well enough to benefit from that cure.
I personally feel bad for whoever wrote that email, because I don’t know how anyone can survive in this world being that naive.

Keep up the good work, and Ill go donate another dollar =)

Love, Alyssa
In Loving Memory of Danny

]]> By: JenDiS http://breathe4tomorrow.org/2009/02/the-weirdest-dumbest-question-i-have-ever-heard/comment-page-1/#comment-85 JenDiS Wed, 18 Feb 2009 02:44:18 +0000 http://breathe4tomorrow.org/?p=279#comment-85 I am so sorry someone had the balls to actually write that to you. They must not have the disease themselves because anyone that does have it wishes for a cure everyday of their lives. I agree on the medical companies comment. Even though I too am very thankful for the advances they have made, but you are right...why would they make a cure when they make tons of money off of us. That comment is inconsiderate and just rude. Take it and just add it to the hall of dumb questions and comments and make it number one!!! To whoever wrote that...congratulations!!! You won 1st prize in the dumbest and rude comment ever made to a CF'er. Love, Jen a.k.a JenDiS on CF Forum I am so sorry someone had the balls to actually write that to you. They must not have the disease themselves because anyone that does have it wishes for a cure everyday of their lives.
I agree on the medical companies comment. Even though I too am very thankful for the advances they have made, but you are right…why would they make a cure when they make tons of money off of us.

That comment is inconsiderate and just rude. Take it and just add it to the hall of dumb questions and comments and make it number one!!!

To whoever wrote that…congratulations!!! You won 1st prize in the dumbest and rude comment ever made to a CF’er.

Love,

Jen a.k.a JenDiS on CF Forum

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